Welcome to Diagnosis Library, a website designed to be one of the first which a person visits on receiving a rare disease diagnosis for either a loved one or themselves. We aim to make this a place of hope and encouragement, where experience can be shared to help others and ease minds.

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The premise is a four minute video, filmed by someone who received the diagnosis either for themselves or a loved one, many years previous. What entails is an introduction, a reflection, and an answer to the question, "What would you say to yourself if you could go back to that day of diagnosis now?"

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If you have just received a diagnosis, please do not hesitate to get in touch for further support.

If you would like to contribute a video of your own, do let us know.