Question 1

I would like more support. Who can I contact?

Accepted Answer

You can send us an email to info@diagnosislibrary.com at any time and we will do everything we can to provide the relevant and appropriate support.

Question 2

I would like to contact one of the speakers. Is this possible?

Accepted Answer

Some of the speakers have given consent for people to get in touch with them directly if requested. If you would like to speak with someone you have seen on this site, please send us an email at info@diagnosislibrary.com

Question 3

How can I contribute a video to Diagnosis Library?

Accepted Answer

We are always open to having new speakers with experience of a paritucular rare disease journey. Please do get in touch if you'd like to be involved. info@diagnosislibrary.com

Question 4

I would like to contribute a video, but I'm not sure what to say."

Accepted Answer

We have put together a list of video prompts to help our speakers. Some of these prompts include:
- If you could go back to that day of diagnosis now and have a brief chat with yourself, what would you say?
- What helped you through that time?
- What gave you hope? What reassured you?
- How do you feel differently now? Why?
- If you’re still learning, feel free to say that.
- Is there anything you would have done differently?
- How has your child managed with their condition?
- Has it changed your outlook on life?

Question 5

Is Diagnosis Library on social media?

Accepted Answer

Yes. Our main social media page is www.facebook.com/diagnosislibrary(http://www.facebook.com/diagnosislibrary)
You will see that while all our videos are added to the library when they are ready, we share the videos on social media periodically.

Questions and Contact