Muscle Owl Talks Ep79: Wellness for People with a Disability
Watch our latest episode of Muscle Owl talks as we discuss wellness for people with disabilities - what it means, why it is so important,...
Muscle Owl Talks Ep76: Fast Track - Accelerated Access Pathway
The UK government announced a new Fast Track scheme for breakthrough drugs. While more clarity is needed, this is a good start. Join us...
Visibility is Not Inclusion
I’ve learned a lot over the years. Perhaps the hardest lesson is that visibility of disabled people has never equalled inclusion. I’m a...
Muscle Owl Talks Ep65: SMA Awareness Month 2017 (August 2017)
August is SMA Awareness Month - you may have noticed from our frequent posting! We all know spinal muscular atrophy is a form of muscular...
"Please do not assume that Charlie's life – or any of us who live with severe muscle-wastin
It's been a while since I ventured to a written blog where I speak entirely personally. Over the past few months I've stayed almost...
Muscle Owl Talks Ep60: Trains, the London Tube, and Accessibility!
Zoe was taken an hour out of her way last week, when her tube train decided not to stop at the station without prior warning! All this...
Muscle Owl Talks Ep54: Charlie Gard & Patient/Parental Consent
Charlie Gard is a young child who is currently being cared for at Great Ormond Street Hospital in London; he is currently on life support....
Muscle Owl Talks Ep53: Spinraza Delay in UK?! SMA Treatment (June 2017)
Late night edition Muscle Owl Talks! We discuss the latest regarding SMA and Spinraza (nusinersen) in the UK. 70 children still not on...
Muscle Owl Talks Ep50: The AHCA & Pre-existing Condtiions!?
The AHCA is ready to replace the ACA (Obamacare). What does that mean at this moment in time? This week Michaela and Peter are joined by...
Michaela's Motability Driving Test! #PASSED
Today our co-editor Michaela was out and about, taking her high tech test drive! As many of you will know, Michaela has SMA muscular...
