Muscle Owl Talks Ep65: SMA Awareness Month 2017 (August 2017)
August is SMA Awareness Month - you may have noticed from our frequent posting! We all know spinal muscular atrophy is a form of muscular...
Muscle Owl Talks Ep57: Sports Day for Children with a Disability?
We hope you're enjoying the heat wave - depending on where you are in the world! With it being Summer in the northern hemisphere, and...
Muscle Owl Talks Ep53: Spinraza Delay in UK?! SMA Treatment (June 2017)
Late night edition Muscle Owl Talks! We discuss the latest regarding SMA and Spinraza (nusinersen) in the UK. 70 children still not on...
Michaela's Motability Driving Test! #PASSED
Today our co-editor Michaela was out and about, taking her high tech test drive! As many of you will know, Michaela has SMA muscular...
Muscle Owl Talks Ep46: Spinraza Approved for All Types of SMA by EMA (Europe)
On Friday we received the news that Spinraza - the latest (and first) treatment for spinal muscular atrophy - had been approved by the...
SPINRAZA APPROVED by EMA for all types of SMA
After receiving approval from the FDA in the United States, the long awaited treatment for spinal muscular atrophy (SMA) has been...
Muscle Owl Talks Ep 37: Behind the Scenes Chat on Drugs & Treatments
Join us for Muscle Owl Talks Episode 37! It's a special behind the scenes episode, recorded before a filmed discussion a few weeks back....
Muscle Owl Talks Ep20: Life Expectancy and Muscular Dystrophy?!
"If you outlive the age that they say you're going to live, you can feel lost!" - Vivek Gohil Using life expectancy for muscular...
