Muscle Owl Talks Ep76: Fast Track - Accelerated Access Pathway
The UK government announced a new Fast Track scheme for breakthrough drugs. While more clarity is needed, this is a good start. Join us...
21 Awesome Halloween Costumes Built Around a Wheelchair!
Starting with our very own Co-Editor, Michaela Hollywood's UP classic back in 2009... Which costumes are your favourites? Are you...
Muscle Owl Talks Ep75: Duchenne UK and DMD Pathfinders - Seeking Adult Perspectives
Duchenne UK and DMD Pathfinders are looking to recruit a panel of adults with Duchenne who can give their views on potential treatments...
Muscle Owl Talks Ep74: This Body Is Worthy
"My name is Hannah Soyer. I am 22 years old. I have a body that mainstream society says is not worthwhile or beautiful. I'm deciding to...
Campaign for Duchenne Drug Translarna in Ireland
Translarna - one of the treatments for Duchenne muscular dystrophy - is available in countries all across Europe. But it still isn't...
Muscle Owl Talks Ep73: Understanding the Clinical Trial Process for Rare Diseases
Watch our latest episode of Muscle Owl Talks! We are joined by Action Duchenne CEO Diana Ribeiro, and Lynnette Ellison, as Diana answers...
David Mayes - A Tribute from Vivek Gohil
This week, David Mayes - friend of Muscle Owl, and one of the closest friends to our co-editor, Vivek - passed away. He had Duchenne...
AMO Pharma: Encouraging Phase II Results for Congenital and Juvenile Myotonic Trial.
AMO Pharma has announced results from its ongoing phase II study investigating two doses of tideglusib (AMO-02) in adults with congenital...
Visibility is Not Inclusion
I’ve learned a lot over the years. Perhaps the hardest lesson is that visibility of disabled people has never equalled inclusion. I’m a...
Muscle Owl Talks Ep69: No Wheelchair on the First Day of School?!
Today is World Duchenne Awareness Day. It was also 4 year old Fraser's first day of school! However Fraser - who unlike many with DMD,...
