Muscle Owl Talks Ep68: World Duchenne Awareness Day with Jon Hastie
Tune in to the first of our two special episodes for World Duchenne Awareness Day! We are joined by our friend and regular guest Jon...
World Duchenne Awareness Day 2017 - Our Community's Balloons!
It’s World Duchenne Awareness Day 2017! Here is our annual Duchenne Awareness Day animation, featuring facts about the condition, and ALL...
Muscle Owl Talks Ep67: Duchenne - Just Children?
Duchenne muscular dystrophy.... A childhood condition? After reading a number of posts from around the community, Peter and Vivek respond...
Muscle Owl Talks Ep66: SMA Awareness 2017 - Advice for Newly Diagnosed Parents
It's the final day of SMA Awareness Month, so here is a special episode of Muscle Owl Talks!
Muscle Owl Talks Ep65: SMA Awareness Month 2017 (August 2017)
August is SMA Awareness Month - you may have noticed from our frequent posting! We all know spinal muscular atrophy is a form of muscular...
"Please do not assume that Charlie's life – or any of us who live with severe muscle-wastin
It's been a while since I ventured to a written blog where I speak entirely personally. Over the past few months I've stayed almost...
Muscle Owl Talks Ep61: Accessible Gaming with Ian Hamilton and Vivek Gohil
This week on Muscle Owl Talks, we spoke to gaming expert, Ian Hamilton. He and Vivek discussed how the gaming industry is making games...
Changing Places Day 2017
Across the UK, an estimated 250,000 people require accessible toilets/facilities to help them change. Their disabilities range from...
Muscle Owl Talks Ep60: Trains, the London Tube, and Accessibility!
Zoe was taken an hour out of her way last week, when her tube train decided not to stop at the station without prior warning! All this...
What is EAMS and how could it help men with Duchenne muscular dystrophy in the UK?!
In episode 59 of our weekly chat show Muscle Owl Talks, we hosted Action Duchenne CEO, Diana Ribeiro, to discuss the Early Access to...
